Stories
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Stories •
Our blog is a space of learning, connection, and empathy. Here, we share the most vulnerable tales from our families in hopes of educating our community on the trials and triumphs of the transplant journey.
If you would like to share your transplant story, please let us know. We would love to feature it on this page!
Meet our 25th Anniversary Ambassador: Julian
Julian’s story is one of resilience, creativity, and gratitude: a journey shaped by medical complexity, strong family support, and a deep appreciation for life. We recently had the chance to sit down with Julian and his mom to learn more about their journey, the challenges they’ve faced, and the role COTS has played in their lives.
A Transformative Year: Sierra’s Update
For Sierra, life isn’t defined solely by her transplant or milestones. Four years after her transplant, her journey continues to be one of growth, independence, and intentional living. Sierra reflects on moving past the shock and trauma of her early years to now live each day with confidence, hope, and purpose, fully embracing her second chance and inspiring others with her strength and grace.
A Creative Lifeline: How Art Therapy is Transforming Care for Young Transplant Patients
At BC Children’s Hospital, Nicola Elischer, the hospital’s first-ever art therapist for the multi-organ transplant team, is carving out a space where children facing lifelong medical challenges can find empowerment, self-expression, and emotional relief-one brushstroke at a time.
Supporting Trauma: Play Through the Senses
Children who have experienced medical trauma often feel disconnected from their bodies or overwhelmed by their environments. Sensory play is a gentle, powerful way to help trauma survivors connect to their bodies.
Meet our 2025 Ambassador: Sierra
Imagine being 10 years old and having your heart removed from your body and replaced with a new one. For our 2025 Children’s Organ Transplant Society Ambassador, Sierra, this was a reality.
Meet our 2024 Ambassador: Bruno
Born at 24 weeks, with a liver transplant at four years old, Bruno has defied all odds.
Advice and Insight from Dr. Varghese
In reflecting on Dr. Varghese’s insights, it becomes evident that navigating the pediatric organ transplantation journey is multifaceted, and encompasses not only medical considerations but also psychological, emotional, and social dimensions.
Caring for Yourself While Caring for Your Child
Parenting a child undergoing an organ transplant can be incredibly challenging, both emotionally and physically. While your focus is on your child's well-being, it's crucial to remember that taking care of yourself is equally important.
Nutrition Guidance for Organ Transplant Families
Ensuring proper nutrition is crucial when caring for a child undergoing an organ transplant. A well-balanced diet can aid in the recovery process and support overall well-being.
Tips Managing Medications
Medications are a crucial part of the post-transplant journey, and understanding how to manage them is vital. Here are some tips to help you navigate this aspect of care.
Supporting Siblings During a Child's Organ Transplant Journey
When a child undergoes organ transplantation, it can be a challenging time not only for the patient but also for their siblings. Here are some tips on how to support siblings during this journey.
